Thursday, August 21, 2008

How Bad Is Bad?

Hubby had an appointment with the neurologist today (seems like we see a lot of him lately). My sweetie's antibody ratio is still through the roof, so they're wanting to remove his thymus. The good thing is, adults don't need a thymus gland. The bad thing is, the thymus drapes over your heart, and even with all the scopes, etc., it's still a serious surgery. They think it could prolong the time before this horrible myasthenia gets worse, and, at this point, we're all for that.

On the way home, I called my daughter to tell her about our visit. She told me that someone she works with has a friend/relative recently diagnosed with myasthenia gravis, and he already has to tape his eyelid up in order to hold his eye open. Hubby's is atypical and is affecting mainly his legs and feet. Although he has a problem walking sometimes, we feel so blessed and thankful. We think we're getting off lightly compared to many who have this disease. We can cope with wobbly, weak legs and an uneven gait. At least he can see. At least it isn't in his lungs, throat and mouth (tongue, swallowing). That's great! The doctor continues to tell us mg is progressive, and my love will certainly get worse. But how bad is bad? We feel like we're God's favorite kids right now. We've survived, and done it with gusto. What's to keep us from keeping it up for as long as it takes?

All I have to do is look around to see people worse off than we are. Life may not be exactly as we had planned it at this stage in our lives, but that shouldn't limit our ability to enjoy - even LOVE - where we are and what we're doing this very minute, this very second! Whoopee! Bad's not so bad after all!

1 comment:

dulce de leche said...

Sending lots and lots of hugs to you. I admire your joy and faith. You and Don are very special people--I'm glad that we are relatives. :)