We are officially OUT of the prescription drug infusion portion of the clinical research study we became a part of 2 1/2 months ago. They are still going to track Don, but he won't be taking the drug.
The last few weeks have been a nightmare, due to Don's severe allergic reaction to any and all adhesives we tried. He developed a rash that blistered and spread, and the itching was driving him to distraction. He had the Hickman catheter removed yesterday, and, except for a bit of a reaction to a bandage they had put on before I caught it, he's done exceptionally well. He's such a trooper.
We're seeing a bit of digression in other areas of his body now, but we're dealing with it. I'm, personally, glad that we're not having to deal with the twice-daily infusions anymore, because life is complicated enough without that added distraction.
So, life marches on. We've leaped over one hurdle and are preparing ourselves for the next. So far, so good!