I probably shouldn't even be posting tonight, because I feel exhausted - physically, mentally and spiritually. Don's condition has worsened the last few days, and he's fallen twice. The first time he wasn't hurt, but the second time he was going out on Saturday morning to get the paper and fell in the driveway. He hit his head in the left eyebrow area and bled quite a bit, but it isn't serious. The grands were here, and it was a bit upsetting to them to see him hurt, but they handled it well.
I don't mean to complain, because I'm thankful that he isn't in pain and that his illness isn't terminal. But I'm feeling so physically drained. Seems like I have twice the work to do, because I have to help him with everything. He can barely get up the stairs empty-handed, and it's nearly impossible for him to go up stairs with anything at all in his hands. Therefore, I'm having to tote everything that either comes or goes. His spirits are good, but mine are sagging.
We go to the doctor tomorrow for lots of blood work. They're intending to start him on a new treatment since he's worsened since his thymectomy (a disappointment to us and the doctor). It's a bit radical, but it's kind of our last straw. It's called IVIG. We'll go to the hospital for five days in a row for 5 - 7 hours each day. He'll be transfused with immunoglobulin for those hours. They're hoping this treatment will help kill off all the extra antibodies he has in his blood. We'll see.
Okay, I'm done. Now it's time to go upstairs and try to get a good night's sleep (which has been increasingly difficult because he has leg cramps all night long). Tomorrow will surely be a brighter day, and I'll feel stronger. Just needed to unload a bit.