Thursday, January 22, 2009
Here's Where We Are . . .
Today, the MG specialist told us that Don was misdiagnosed with myasthenia gravis. He said (which our regular neurologist has inferred the last two visits) that Don has a motor-neuron disease. He referred to it several times as ALS (which is the disease my dad died from), but it isn't full blown. At the moment, Don's is mainly concentrated in his lower extremities. We're seeing a slight bit of degeneration and involvement in his upper body, but not a lot. We've been dealing with this for a little over a year now, and it's been a steady deterioration of his ability to use his legs. The definite diagnosis has been a blow for us. We had felt that we could deal with the MG, because it does go into remission. We knew, however, that we had seen no remission in Don's case since it began. So, his major surgery in September was probably completely unnecessary. Today has been difficult for us, but our trust in in the Lord. He's been more than faithful to us. Whatever the future holds, God's our Fortress, our Strong Tower and our Hope. Since my dad died of ALS, I'm tending to remember history. There's no comfort in that. This evening is better than this afternoon was. Don and I held each other and cried in each other's arms - and that has made it better. Sometimes, when you're walking blindly, crying is about all that relieves the present pressure. We will survive, however. We have a strong love for each other and for the Lord. Please believe with us that God's healing will come and His grace will sustain as needed.