Friday, June 24, 2011
Don rarely has the hiccups. I can probably count the number of times on one hand that he's hicced in the 45 years we've been married. That all changed this past Wednesday. He started hiccuping right after lunch at about 1 p.m. and continued right on through the evening until about 1 a.m. They would leave for 15 or 20 minutes, then come right back.
I knew something unusual was going on, so, of course, I Googled it. Right there, in one of my searches, it explained that persistent hiccups are a seldom-seen symptom of the respiratory involvement of ALS. Who knew?
We had ALS Clinic today, which is a several hour affair. Don had gotten the hiccups early in the morning and still had them while we were at Clinic. Some of the techs there were telling him different things to try to relieve the torment of continuous hiccups, and they were all quite surprised when I told them of my research and find. Our last visit of the day was with his neurologist, who is renown for her knowledge of ALS. She confirmed that Don's hiccups were, indeed, an uncommon symptom of the progression of the disease. She said, however, that she had NEVER seen the symptom in any other of her patients.
I think this is one time Don would have preferred to have been a part of the status quo. The hiccups drive him crazy, and it's nearly impossible to sleep soundly with someone who is hiccing. Maybe this will be short-lived. Hope so!